Leigh syndrome - where are those mitochondria replacement therapies?

Dear Sir: I came across your blog after reading Stanley Bing’s recent article in Fortune Magazine. I will try to be brief.

I have a 4 year old son who was diagnosed 1.5 years ago with a form of Leigh’s disease; one of the most devastating forms of mitochondrial disease. While he is receiving care from some of the most experienced doctors in the area of mito disease, as you are probably aware the general approach is to prescribe a vitamin regimen and “keep him comfortable.” That is to say, there is no cure or treatment for the disease, and the few centers that are researching the disease are not close to finding one. Since the disease is degenerative, this is a hard pill to swallow.

I am writing to you in hopes that you can recommend doctors or research centers that are applying experimental techniques to treat the disease through systemic regmed, stem cell or other methods. If I wait for traditional medicine to find a treatment (and especially the FDA), I fear it may be too late for my son.

Any help or advice would be appreciated.

Best regards -

Joe Mileti [miletijoe][at][hotmail.com]

Dear Mr. Mileti,

thanks for your honest mail. The kind of organellar, mitochondrial therapy that would be needed in order to replace the